Girl with ‘glass bones’ has suffered 50 fractures and had 13 operations
Vitória, 11 years old, is a success on social networks, where she tells what it's like to live with this rare disease.
© TikTok / Vitória
Mundo Brasil
Vitória is only 11 years old, but she has already been through a lot. During her short life, she has suffered 50 fractures and undergone 13 surgeries. Doctors even warned her parents that she would not survive, but she has shown that she came into the world to overcome.
To the Brazilian website G1, her mother, Vânia, reveals that she was six months pregnant when she was told that her daughter suffered from osteogenesis imperfecta, a syndrome known as 'glass bones', which could cause her death even before birth or shortly after being born.
The syndrome, as the same website explains, is caused by genetic mutations that affect the production of collagen, a protein that provides support to bone cells. Without it, the bones become more fragile and, with the fractures, they become deformed.
The search for treatment led Vitória's parents to move from Brazil to the United States about nine years ago.
In Boston, the complexity of Vitória's case led doctor Errol Mortime to want to help. "She has a very severe form of osteogenesis imperfecta. There are several different types and hers is three, which means that her bones break very, very easily. If we don't treat it preventatively, she will always live in a cast", says Vânia, adding that the syndrome also impairs growth, that is, despite being 11 years old, Vitória is only 90 centimetres tall and should reach a maximum of 1.20 metres in adulthood.
Despite all the difficulties, Vitória does not let herself be defeated. The girl is a huge success on social media, where she shares her daily life. On TikTok alone, the Brazilian child has more than 1.4 million followers, most of them from the USA.
She is the one who records the videos, chooses the scenarios and the subjects she wants to talk about. In addition to the disease, Vitória gives beauty and play tips.
In each of the videos, the girl has thousands of likes.
@grwms.by.vitoria Come get a blow out with me 🫶🪞️🫧 #fyp #fypシ #grwmsbyvitoria #preppyaesthetic #grwm #blowout #hairsalon #tysm #hair original sound - Vitoria
Read Also: Tips for dealing (better) with Irritable Bowel Syndrome (Portuguese version)
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